A Mother’s Perspective

20130523-061023.jpgJeff found this poem and it resonated so true to us. One week ago we entered an incredible new world called “parenting”. There are many members in this club. Members receive full access to sleepless nights, fewer showers, endless worry and watching their hearts live outside their bodies. One week ago we also were handed an additional ticket into an “exclusive” club that we never knew existed. The “heart family” club accepts 1 out of 100 families because that’s how many kids congenital heart defects affect. We are much deeper in this club and will understand the true depth of being a member since Owen’s condition is so rare and he will require multiple open heart surgeries in his life. Our “club” consists of mountains of medical terminology, watching time stop as your child is wheeled into surgery, taking a breath and forgetting for days to exhale, dinners at midnight, learning that doctors are humans too, learning endless names to medications and that at 1 week old your son already has a drug of choice, and your membership includes full access to other “heart” parents that truly understand. One of the greatest “perks” of this membership is YOU! Prayers have come from over 15 countries around the world. The village surrounding our son in prayer knows no prejudice from race, sex, or religion. The village only contains compassion, empathy and love and for that we thank all of you!

As we gaze for 15 hours a day at the miracle that made us members, we feel so blessed to have been welcomed into this club. Our world is forever changed! When we look at our son we know what it means to have a bad day and I’m pretty sure I’m gonna find myself complaining a lot less about traffic, bad hair days, and the last ten pounds that just won’t go away. Owen has shown me a love and appreciation for life that is beyond anything I could have imagined. I’m so lucky to be his Mom!

A Mother’s Perspective
by Stephanie Husted

You passed me in the shopping mall…
(You read my faded tee)
You tapped me on the shoulder…
Then asked…”What’s a CHD?”
I could quote terminology…
There’s stats that I could give…
But I would rather share with you…
A mother’s perspective.

What is it like to have a child with a CHD?
It’s Lasix, aspirin, Captopril…
It’s wondering…Lord what’s your will?…
It’s monitors and oxygen tanks…
It’s a constant reminder to always give thanks…
It’s feeding tubes, calories, needed weight gain…
It’s the drama of eating…and yes it’s insane!
It’s the first time I held him…(I’d waited so long)
It’s knowing that I need to help him grow strong…
It’s making a hospital home for awhile…
It’s seeing my reward in every smile.
It’s checking his sats as the feeding pump’s beeping…
It’s knowing that there is just no time for sleeping…
It’s caths, x-rays and boo boos to kiss…
It’s normalcy I sometimes miss…
It’s asking do his nails look blue?
It’s cringing inside at what he’s been through.
It’s dozens of calls to his pediatrician…
(She knows me by name…I’m a mom on a mission)
It’s winters homebound…and hand sanitizer…
It’s knowing this journey has made me much wiser.
It’s watching him sleeping…his breathing is steady…
It’s surgery day and I’ll never be ready.
It’s handing him over…( I’m still not prepared…)
It’s knowing that his heart must be repaired…
It’s waiting for news on that long stressful day…
It’s …praying…it’s hoping…that he’ll be okay.
It’s the wonderful friends with whom I’ve connected…
It’s the bond that we share…it was so unexpected…
It’s that long faded scar down my child’s small chest…
It’s touching it gently and knowing we’re blessed…
It’s watching him chasing a small butterfly…
It’s the moment I realized I’ve stopped asking why?
It’s the snowflakes that fall on a cold winter’s day…
(They remind me of those who aren’t with us today)
It’s a brave little boy who loved Thomas the train…
Or a special heart bear…or a frog in the rain….
It’s the need to remember we’re all in this plight….
It’s their lives that remind us we still need to fight!
It’s in pushing ahead amidst every sorrow…
It is finding the strength to have hope for tomorrow.

http://www.hellocharlottejoy.com/2012_12_01_archive.html

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3 thoughts on “A Mother’s Perspective

  1. Beautiful perspective and inspiration. You two are amazing, I am ever in awe of your positivity and your ability to express yourselves with so much of your own “hearts” . One day at a time!

    Warm thoughts to all.

    Laurie D

  2. The poem in your post is great! Where did you find it? I really enjoy reading your blog and the positives that Owen is gaining. You talk about your experiences so far and it is so true. We must take one day at a time was always (and still is) my thought for the day. You can’t think about the future and instead take what you have now! Stay strong heart momma!

  3. A poem that brings tears to my eyes and lots of memories as I too am a Mother that son was also in the “zipper club” years ago. The love you three have makes the road ahead a little easier. My prayers and thoughts are with you everyday.

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